Patient reported outcomes measures (PROMs) are an important mechanism for getting patients’ own assessments of how health services and interventions have affected their quality of life, daily functioning, symptom severity, and other dimensions of health that only they can know.
VAHI has engaged IPSOS to trial the collection of patient-reported outcomes data through the ‘Victorian cancer patients’ experiences of care – chemotherapy module’. The trial involves a patient survey that uses a standardised, validated measurement tool called the EQ-5D.
The EQ-5D is made up of five dimensions: mobility, self-care, usual activities, pain/discomfort and anxiety/depression. Each dimension has 5 levels: no problems, slight problems, moderate problems, severe problems and extreme problems. The patient is asked to indicate his or her health state by ticking the box next to the most appropriate statement in each of the five dimensions. This tool has been chosen to collect data for the trial due to its brevity and its ability to provide quality of life data for patients who have undergone chemotherapy treatment.
The overall aim of the new survey is to assist Victorian cancer services to improve the quality of cancer care delivery and outcomes informed by patients’ direct, timely feedback about their health-related outcomes and experiences.
Fieldwork will be conducted between 1 March and 31 May 2020. Randomly-selected patients will be provided a copy of the survey. The survey will be provided in seven languages, English, Arabic, Traditional Chinese, Simplified Chinese, Greek, Italian and Vietnamese. Results will be available via the VHES portal in October to November 2020.
We will evaluate the survey approach and data collected and use the lessons learned to inform a broader statewide collection of patient-reported outcome data.
If you would like additional information please contact Paulette Kelly Manager, Clinical Registries, Network Support & Analytics, via firstname.lastname@example.org