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Posted on 04 Sep 2019

VAHI is partnering with the Australian Orthopaedic Association, the Florey Institute, Monash University, Safer Care Victoria and the Department of Health and Human Services to pilot four innovative and scalable initiatives aimed at better understanding how patient-reported outcomes (PROs) can be collected and utilised within Victoria.

Patient-reported outcome measures (PROMs) are questionnaires patients complete on their health and quality of life. The information collected from PROMs can help to monitor patient progress, facilitate communication between professionals and patients and/or help to improve the quality of health services. The resulting data can be used to identify how healthcare interventions and treatments may impact outcomes, and form part of a more patient-centred approach to understanding the appropriateness and effectiveness of care.

One of the initiatives focuses on the collection of PROs through the Patient Experiences of Cancer Care Survey (PECCS), for patients who have undergone chemotherapy treatment in an outpatient setting. This involves embedding a standardised set of PROs questions for measuring generic health status in the PECCS. The survey provider recently completed initial testing of this approach with a small group of chemotherapy patients of various ages, cancer types and prognosis, and the feedback was positive. A broader roll out of the survey to approximately 12,000 patients is scheduled for early 2020.

The second initiative aims to understand best practice approaches to reporting on and feeding back PROs data to clinicians. The Florey Institute has already completed a rapid literature review of methods and approaches to feeding back PROs data. We are currently working with clinicians to turn the findings from the literature into tools to assist best practice, to test with other clinicians. This initiative builds on an intervention known as STELAR (Shared Team Efforts Leading to Adherence), which has been successfully deployed in Queensland.

The third initiative is managed by the Australian Orthopaedic Association National Joint Replacement Registry and involves collecting PROs data from patients (at participating pilot sites) before and after shoulder, hip and knee replacement surgery. The registry is currently evaluating results from the first year of the three-year pilot and the lessons learned will inform future roll outs.

Finally, the BroSupPORT project will be delivered in partnership with Monash University. The project will pilot a co-designed patient-facing prostate cancer quality of life predictor tool and resource hub. The first steering committee meeting is taking place this month and we’ll provide an update in a future issue of VAHI news.

For more information, please contact Paulette Kelly on 03 9096 1771 or paulette.kelly@vahi.vic.gov.au.

Page last updated: 04 Sep 2019