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Posted on 11 Dec 2019

Using patient-reported outcomes (PROs) data to support patients in the self-management of their disease

A joint project between VAHI, Monash University, Movember and the Alfred is aiming to design, build and test a patient portal, with and for men with prostate cancer, to assist them in self-managing their disease. It is intended that the portal use patient-reported data to direct men and their support team to resources and aids to address areas of concern raised by the patient in the specific outcomes they report.

The first steering committee for this pilot project was held in October 2019. The committee includes consumers, carers, academics from across Victoria, clinicians and staff from Movember and VAHI.

The project team submitted an ethics application in November in anticipation of co-design workshops to be held in February 2020. The pilot is due to complete in June 2021.

Using patient-reported outcomes (PROs) data to support clinician decision making

In partnership with the Florey Institute of Neuroscience and Mental Health (the Florey) and Safer Care Victoria (SCV), VAHI is exploring best practice approaches to improve the impact of patient-reported outcomes (PROs) in the clinical setting.  

The project aims to identify the most effective formats for PROs data to inform and support clinical decision making. We intend for the project outcomes to inform how clinical quality registries (CQRs) should best feedback PROs data to clinicians to encourage better use of PROs data in decision making. 

A rapid literature review was completed by the Florey in September 2019. The review found that limited work has been done in the area of effective clinician feedback formats for patient-reported data. Three co-design workshops were held in October 2019 to understand current experience reporting on, and feeding back, PROs data. The workshops identified preferred formats for presentation of PROs data.

To canvas a broader range of views, a survey was circulated to a wide range of clinicians through SCV clinical networks, the Department of Health and Human Services cancer program and the Florey. The survey has sought their feedback on the co-designed formats for delivery of PROs data.

A final report for this project is expected in late December 2019. The report will be used to inform next steps.

If you require any additional information about these projects, please contact Paulette Kelly, Manager, Clinical Registries, Network Support & Analytics, via

Page last updated: 13 Dec 2019